Empowering rare disease communities
We keep on top of the latest drug developments, trials, and community news, so you don't have to.
Support groups
Organizations empowered by our specialized publications.
RARE DISEASES
Communities served with dedicated content and resources
Patients
Members connected to the latest news and research
Who we serve
Connecting patients, carers, and support groups
We provide curated content and resources for rare disease communities, improving access to specialized news, research, and clinical trial updates for those who need it most.
Patients and carers
Access expert support, guidance, and practical tools to help you confidently navigate your health journey.
Patient support groups
Get tailored news and resources served to your communities, and boost the reach of your events and programs.
What makes us different?
Community-driven support
Rare disease patient communities trust our tailored resources to help them stay informed and navigate their health journeys with confidence.
AI-powered content
Cutting-edge technology helps our team transform the latest news and medical research into practical insights that are accessible to all.
Support group collaboration
Our partnerships with patient support groups ensure patients have seamless access to all the expert help and information they need.
What we do
How we support rare disease communities
Building safe digital spaces
Our trusted social platforms provide rare disease patients and their carers with unified access to reliable information, shared experiences, and expert guidance.
Curating and enriching information
We leverage the latest technology to transform specialized news and research into accessible, digestible formats for all our rare disease communities.
Partnering with support groups
Our newsletters and resources reduce the workload for patient organizations, enabling them to better serve their communities and focus on their mission.
Improving access to treatment
We track the latest research and treatment breakthroughs, delivering key insights to our communities so that patients can make timely, informed treatment decisions.
