New sickle cell community service launches across South East London

A new initiative to address health inequalities and enhance support for individuals living with sickle cell disorder has been launched by NHS South East London. The new enhanced community service is a collaborative effort aimed at delivering holistic care to patients across the region.

A comprehensive care model

The service introduces community-based specialists, including dietitians, physiotherapists, and pharmacists, working alongside psychologists, nurses, and haematology teams to provide well-rounded care. By focusing on the physical, mental, and socioeconomic needs of patients, this initiative builds upon the Sickle Cell Society’s No One’s Listening report, which highlighted the significant challenges faced by those navigating the healthcare system.

Leaders speak out

Andrew Bland, CEO of the South East London Integrated Care Board, emphasised the importance of this initiative:

Given south east London has the highest numbers of people living with sickle cell in the country, I am delighted we are taking bold action to improve care for our population. This new service will provide more holistic and personalised care, improving the lives of our patients.

Dr Sara Stuart Smith, Consultant Haematologist at King’s College Hospital and Chair of the SELSE Haemoglobinopathy Coordinating Centre, added:

Our multidisciplinary team offers dietary, benefits, pharmacy advice, physiotherapy, group psychological support, and community nursing. It’s a pleasure to see how this project is already making a tangible difference.

Addressing barriers and expanding support

Recognising the socioeconomic challenges faced by patients, the service includes welfare and benefits advice through partnerships with community providers and Southwark Law Centre. Additionally, a peer mentoring programme led by the Sickle Cell Society pairs young people aged 10–24 with mentors who have lived experience managing the condition.

Services are available at three locations across south east London, with remote, telephone, and home visit options for flexibility.

Personal impact

The service is already transforming lives. One parent shared their experience:

The dietitian’s advice on incorporating specific foods into my daughter’s diet was practical and personalised. The pharmacist explained her medication in detail, making a huge difference for us. This new way of working is a significant step forward for families like ours.

Collaborative effort

Developed in partnership with Guy’s and St Thomas’ NHS Foundation Trust, Bromley Healthcare, Oxleas NHS Foundation Trust, Evelina London Children’s Hospital, SELSE HCC, and the South London Office of Specialised Services, the initiative is setting a new standard for sickle cell care in the UK.

We are committed to ensuring this team makes a real difference by providing appropriate, tailored, and holistic care closer to home.”
— Ishbel Collison, long-term conditions service manager at Oxleas NHS Foundation Trust

For more information, visit the South East London ICB Sickle Cell webpage.